Esperanza Macarena Chacón Sánchez
Sevilla, Spain
Teamer in 2 Groups
Contributes every month: €2 to 2 Groups
Since 28-05-2023 has contributed €40
Groups supported
€14,765 Raised
243 Teamers
Teamer since: 28/05/2023
Help us raise funds that will be donated to research and treatment of the rare degenerative genetic disease called facioscapulohumeral muscular dystrophy (FSHD), which is characterised by marked facial inexpressiveness and progressive muscle weakness. Those affected experience varying degrees of disability, eventually losing the ability to walk and becoming totally dependent on others for much of their lives. ww.fshd-spain.org
€644 Raised
29 Teamers
Teamer since: 05/11/2025
Las personas que padecen Enfermedades Neuromusculares y sus familias, deben enfrentarse al deterioro progresivo que conlleva estas enfermedades discapacitantes, unidos a estados anímicos carenciales que provocan la limitación de su actividad, tanto a nivel personal como social. Es imprescindible abordar las necesidades psicosociales de las personas con Enfermedades Neuromuscuales (ENM) y sus familias, brindándoles apoyo emocional, información/orientación sobre los recursos y ayudas disponibles.