Iria is a small girl diagnosed with Foxg1 Syndrome. This rare disease is a mutation in the Foxg1 gene that affects brain development in its earliest stage causing irreparable damage. Iria has a brain injury called Pachygyria along with dyskinetic cerebral palsy and epilepsy. Our little girl needs therapies to advance her development, so we collect funds. Can you help us ??? We keep walking! For more information: www.elsenderodeiria.com
We hope to raise enough funds to help us cover the monthly expenses at the private therapy centers where Iria attends for her training. One of our most immediate projects is for Iria to be able to take advantage of the many benefits of the Atlas exoskeleton and attend monthly sessions. We continue working for Iria!
Posted on
29/06/2020
Publication date
29/06/2020
Field
Disabilities
Families
Patient care
Country
Spain
Region
Madrid
Teaming Manager
28/01/2021 18:31 h
Soy la mamá de Iria. Muchas gracias a tod@s por ayudarnos con este Euro para las terapias de Iria. Aunque aún somos pocos estoy segura de que poco a poco conseguiremos ser muchos mas y poder optar a realizar mas terapias con ella. De nuevo gracias!!!
Read more... Read less
See the entire comment
0 Comments
Comment