Elena Saiz
Murcia, Spain
Teamer in 2 Groups
Since 20-12-2021 has contributed €16
Groups supported
€540 Raised
13 Teamers
Teamer since: 20/12/2021
Did you know that Fragile X Syndrome is the first hereditary cause of decreased intellectual capacity? It affects 1 in 4,000 boys and 1 in 6,000 girls. From the Association, we have been working for 25 years in order to offer support and guidance to families and professionals, promote awareness of the syndrome and provide a specialized service for people with FXS in order to achieve their full inclusion in society.
€6,270 Raised
556 Teamers
Teamer since: 15/05/2023
Carolina, Daniel y Hugo son tres hermanos diagnosticados de Ataxia de Friedreich hace 5 años. Es una enfermedad neurodegenerativa, sin cura, que ataca al sistema nervioso, provocando debilidad muscular, faltas de coordinación y de equilibrio, diabetes, cardiopatía, disartria, disfagia y todo ello irá en aumento puesto que actúa de manera progresiva,hasta convertirlos en grandes dependientes. Razón por la cual debemos cubrir sus terapias y apoyar los proyectos de investigación. Nos ayudas?