Bubbles and Dreams.org

Bubbles and Dreams.org

2  Teamers
277 € récoltés

Asociación sin fines de lucro que trabaja en beneficio de los niños que sufren enfermedades raras y sin diagnostico. Nuestros principales objetivos son: ayudar tanto a los niños como sus familias, impulsar la investigación, crear un grupo de apoyo psicológico e informativo, dar visibilidad a estas enfermedades, fomentar la convivencia de los niños enfermos y sanos, promover las terapias tradicionales y alternativas y crear conciencia social en torno a esta realidad que cada día golpea mas niños

Nous destinons notre collecte à :

COCOFISHGO research project Looking for a treatment for those affected by VPS13D

Those affected by VPS13D who suffer from disorders of the motor and muscular system, ataxia and more

Our goal is to develop a rare disease research project, focusing this year on those affected by VPS13D, a condition that causes different damage to the motor and muscular system, ataxia, among others, and which has only been identified a few years ago. In Spain at the moment there is only one known case (www.investigacioinparachloe.org) but we are in contact with about 15 more cases around the world. The little ones suffer the most serious damage and at the moment little and nothing is known about how to treat them. Through crowdfunding we are financing a research project that we have called COCOFISHGO and that is developed at the GERMANS TRIAS Y PUJOL RESEARCH INSTITUTE led by its director, DR. MATILLA. Our goal is to find a treatment that stops the motor deterioration that this condition produces in children to give them hope for a better life. Help us get it!!


Publié le
12/10/2017

Récolté

Nous avons récolté à ce jour :
277 €
Nous avons déjà donné :
269 €
Nous allons donner :
8 €
Voir détail des collectes

Information

Date de publication
16/12/2014

Type de Groupe
ONG

Domaine
Aide à des malades
Enfance et Adolescence
Familles
Personnes handicapées
Recherche

Pays
Espagne

Région
Málaga

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https://www.teaming.net/bubblesanddreams-org