BARDET-BIEDL Syndrome

01/05/2020

BARDET-BIEDL est une maladie rare qui touche à peine plus de 500 personnes en France. Doigts surnuméraires, rétinopathie pigmentaire entraînant, d'abord, une perte de la vision nocturne puis la diminution progressive du champ visuel donnant l'impression de voir dans un tube dont le diamètre réduit inexorablement, problèmes rénaux, obésité, difficultés cognitives et psychomotrices... Notre association a besoin de fonds pour soutenir la recherche. Vous pouvez nous aider, devenez TEAMER BBS !

3 Teamers

Total levantado até agora:

32€

Este é o valor total que foi arrecadado pelo grupo desde sua criação. Inclui as doações entregues até agora e as ainda não entregues.

Fórum

This forum is only for the Teamers and Teaming Managers of this Group. To comment:


If you are already in this Group:

If you are not in this Group:

Any Teamer has been inspired to comment yet. Write a message giving your support, share your ideas to spread the Group, tell us what being a Teamer of this Group means to you, ask whatever you want to know about the cause...

Comment and be the first one!

Last comment

Any Teamer has been inspired to comment yet. Write a message giving your support, share your ideas to spread the Group, tell us what being a Teamer of this Group means to you, ask whatever you want to know about the cause...

Comment and be the first one!

See the entire forum

Teaming Manager

01/05/2020

Véronique Heloir

Colabore com  1  Grupo e seja seu  1  líder

3 Teamers

Lista de Teamers ordenada por data de ingresso

Significado de membro:É todo indivíduo que contribui com um euro por mês para seu grupo.

11/05/2020

Marie-Jeanne BURLETT

Colabore com  1  Grupo

Clarisse GROUSSARD

01/05/2020

Clarisse GROUSSARD

Colabore com  1  Grupo

01/05/2020

Véronique Heloir

Colabore com  1  Grupo e seja seu  1  líder