Susana Guillen gazapo

Susana Guillen gazapo

Barcelona, Espagne


Teamer de 1 Groupes

Depuis le 15-12-2019 il/elle a donné 37 €

Groupes auxquels il/elle participe

1

2 062 € récoltés

45 Teamers

Teamer depuis :  15/12/2019

A girl in twenty million, finding the cure to premature aging

I am Alexandra, I am 6 years old and I am one of 20 million. In the world there are only 135 children who suffer from Hutchinson Gilford Progeria Syndrome; an ultra-rare genetic disease that causes premature aging with an average life expectancy of 14 years and that currently has no cure. From the Progeria Alexandra Peraut Association, we ask for your collaboration to improve the quality of life of these children and to finance research on their cure.