Susa HG

Madrid, Spain


Teamer in 1 Groups

Contributes every month: 1€ to 1 Groups

Since 31-08-2020 has contributed 8€

Groups supported

1

3,951€ Raised

198 Teamers

Teamer since:  31/08/2020

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es