Rosa Quiveu Fernández

Rosa Quiveu Fernández

Huelva, Spagna


Teamer in 1 Gruppi

Dona ogni mese: 1 € a 1 Gruppi

Da 12-04-2019 ha contribuito 59 €

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10.471 € Totale raccolto

162 Teamer

Teamer da:  12/04/2019

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es