Rosa Leal Garvi

Rosa Leal Garvi

Castellón, Spagna


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Da 27-01-2020 ha contribuito 51 €

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Teamer da:  27/01/2020

Fundación AHUCE Osteogénesis Imperfecta

AHUCE Foundation (www.fundacionahuce.org) works to improve the quality of life of people with Osteogenesis Imperfecta (OI) through research. OI is a congenital pathology characterized by an inadequate formation of bone tissue. People's bones are very fragile. There are other manifestations, such as short stature, hyperlaxity, respiratory problems, cardiovascular problems, weak musculature, hearing loss, vision problems, scoliosis and chronic pain.