Roque R. Montes

Sevilla, Spagna


Teamer in 1 Gruppi

Da 27-12-2018 ha contribuito 33 €

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162 Teamer

Teamer da:  27/12/2018

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es