Ramon Ibañez Cubeles
Barcelona, Espanha
Teamer de 1 Grupos
Desde 05-04-2017 contribuiu 35 €
Grupos de que participa
5 609 € Arrecadados
33 Teamers
Teamer desde: 05/04/2017
Marta is the first child diagnosed with Opitz C Syndrome (www.asopitzc.org) in Spain. It is a serious and unknown disease that makes Marta be totally dependent. We promote the research carried out by a team from the University of Barcelona. To continue with the project, it is essential to continue raising funds for this research team. The first objective, to locate genetic mutations, is already being achieved. Now, we must go on to find therapies that help these children.