Rafael De la Fuente Frechoso

Rafael De la Fuente Frechoso

Córdoba, Espagne


Teamer de 1 Groupes

Chaque mois il/elle apporte 1 € à 1 Groupes

Depuis le 09-02-2021 il/elle a donné 38 €

Groupes auxquels il/elle participe

1

2 626 € récoltés

40 Teamers

Teamer depuis :  21/02/2021

Lucha con Martina

Martina is a Córdoba baby who suffers from a rare disease called SMARD1 known as Spinal Muscular Atrophy with Respiratory Difficulty, this disease affects one hundred children worldwide, being Martina the only one affected in all of Spain. Martina with only 3 years requires mechanical ventilation 24 hours a day to breathe, can not walk, or sit and feeds through a tube. THE PROCEEDS ARE FOR RESEARCH, a gene therapy tested on animals with promising result