Would you like to join us to research for Marta's disease?

28/11/2014

Personal

Marta is the first child diagnosed with Opitz C Syndrome (www.asopitzc.org) in Spain. It is a serious and unknown disease that makes Marta be totally dependent. We promote the research carried out by a team from the University of Barcelona. To continue with the project, it is essential to continue raising funds for this research team. The first objective, to locate genetic mutations, is already being achieved. Now, we must go on to find therapies that help these children.

56 Teamers

Total raised:

3,102€

This is the over-all amount the Group has collected since it was created;. The amount includes the euros already donated and those to be donated.

Project we support

Búsqueda del gen responsable del síndrome de Opitz C

Associacio Sindrome Opitz C

El síndrome de Opitz C es una enfermedad muy grave para la que no existe tratamiento, diagnóstico prenatal o consejo genético. Se desconoce el gen responsable y su modo de herencia. El objetivo del trabajo de investigación del grupo de genética molecular humana de la UB

Búsqueda del gen responsable del síndrome de Opitz C

Posted on29/11/2014

El síndrome de Opitz C es una enfermedad muy grave para la que no existe tratamiento, diagnóstico prenatal o consejo genético. Se desconoce el gen responsable y su modo de herencia. El objetivo del trabajo de investigación del grupo de genética molecular humana de la UB

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Group progresses

Carles Godall Alcón

11/04/2017 12:49 h

Hola, teamers del grupo "¿Nos ayudas a saber que le pasa a Marta?".
El grupo de la Universidad de Barcelona que está llevando a cabo el proyecto de investigación genética, quiere compartir con vosotros los importantes hallazgos que están consigui...

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Carles Godall Alcón

14/12/2016 09:51 h

Hola!

Comparto con vosotros un nuevo artículo de prensa, donde nos citan como ejemplo.

Saludos!



http://www.eldiario.es/catalunya/sanitat/casos-Nadia-hacen-avanzar-ciencia_0_590391268.html

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Carles Godall Alcón

14/12/2016 09:51 h

Hola!

Comparto con vosotros un nuevo artículo de prensa, donde nos citan como ejemplo.

Saludos!



http://www.eldiario.es/catalunya/sanitat/casos-Nadia-hacen-avanzar-ciencia_0_590391268.html

See the entire comment


0 Comments

See the entire forum

Teaming Managers

Carles Godall Alcón

28/11/2014

Carles Godall Alcón

Cooperates with  2  Groups and lead  1  them

28/11/2014

Sandra Vilaseca Parga

Cooperates with  5  Groups and lead  1  them

56 Teamers

Teamers sorted by joining date

What does it mean to become a Teamer?A Teamer is an individual who decides to donate 1 euro every month to his/her Group.
Dan7 Walker

05/02/2019

Dan7 Walker

Cooperates with  7  Groups

13/08/2018

Toni Martí

Cooperates with  4  Groups

Jose María Robledo Zabala

18/09/2017

Jose María Robledo Zabala

Cooperates with  139  Groups

17/08/2017

Maria Ramirez Gutierrez

Cooperates with  2  Groups

17/06/2017

José Luis Blanco Rosales

Cooperates with  5  Groups

16/05/2017

MAriac Cobos Ballesteros

Cooperates with  4  Groups

11/05/2017

JOSE MARIA CAMPOS GARCIA

Cooperates with  7  Groups

26/04/2017

Daniel Gómez Teruel

Cooperates with  1  Group

20/04/2017

Roi Morán Monzo

Cooperates with  1  Group

18/04/2017

Javier Bernal Barbero

Cooperates with  3  Groups

12/04/2017

Jordi Tañà i Arnaus

Cooperates with  1  Group

10/04/2017

Nuhacet Monzon Santana

Cooperates with  1  Group

Juan Jose Carmona Mendoza

05/04/2017

Juan Jose Carmona Mendoza

Cooperates with  1  Group

05/04/2017

Gerard Fandos Garcia

Cooperates with  1  Group

05/04/2017

Belén Coronado García

Cooperates with  1  Group

05/04/2017

María Dolores Mateo Carballo

Cooperates with  2  Groups

05/04/2017

Ramon Ibañez Cubeles

Cooperates with  1  Group

05/04/2017

JOSE ENRIQUE MARTIN PEREZ

Cooperates with  1  Group

12/02/2017

Sara Blanco

Cooperates with  3  Groups

Andrés Miguel Reglero Pérez

09/02/2016

Andrés Miguel Reglero Pérez

Cooperates with  1  Group