María de los Reyes León Pérez

María de los Reyes León Pérez

Sevilla, Espanya


Teamer de 1 Grups

Des del 18-03-2019 ha aportat 45 €

Grups on participa

1

10.471 € Recaptats

162 Teamers

Teamer des de:  18/03/2019

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es