Asociación Síndrome Phelan-McDermid

16/08/2018

La Asociación del Síndrome de Phelan-McDermid está compuesta por padres, familiares y afectados por el síndrome. Conscientes de los desafíos y recompensas de criar a un niño con el síndrome, la Asociación fue creada en 2013 para tratar de proporcionar recursos para sus miembros actuales y futuros. Nuestro mayor objetivo es asegurar que las familias tengan acceso a información fiable y actualizada sobre el síndrome, así como fomentar la investigación para encontrar una solución a la enfermedad.

92 Teamers

Total raised:

704€

This is the over-all amount the Group has collected since it was created;. The amount includes the euros already donated and those to be donated.

Amount raised for the project

92€

This is the amount which will be destined to the cause the Group is supporting at the moment. When the Teaming Manager carries out the donation, this counter will be set back to 0.

We've already donated:

612€

This is the amount the Group has donated since it was created;. It is the total sum of euros transferred to various causes the Group has been supporting (or to a single cause in the event the Group always supports the same one).

Project we support

Investigación del Síndrome Phelan-McDermid

Asociación Síndrome Phelan-McDermid

Todo lo recaudado se destinará a la investigación del Síndrome Phelan-McDermid y a la posterior divulgación de sus frutos para que los afectados, sus familias, médicos, terapeutas y todos aquellos interesados en esta condición genética tengan acceso a información fiable

Investigación del Síndrome Phelan-McDermid

Posted on18/08/2018

Todo lo recaudado se destinará a la investigación del Síndrome Phelan-McDermid y a la posterior divulgación de sus frutos para que los afectados, sus familias, médicos, terapeutas y todos aquellos interesados en esta condición genética tengan acceso a información fiable

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Group progresses

Pilar Grande Seijas

18/08/2018 10:16 h

Gracias por ayudarnos a iniciar este proyecto y hacer posible que siga creciendo.

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2 Comments

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Last comment

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Comment and be the first one!

See the entire forum

Teaming Manager

Pilar Grande Seijas

16/08/2018

Pilar Grande Seijas

Cooperates with  1  Group and lead  1  them

92 Teamers

Teamers sorted by joining date

What does it mean to become a Teamer?A Teamer is an individual who decides to donate 1 euro every month to his/her Group.
José Fernando Ramírez

29/04/2019

José Fernando Ramírez

Cooperates with  3  Groups

17/04/2019

Penelope Ausejo

Cooperates with  1  Group

Cristina Rodríguez Andrés

15/04/2019

Cristina Rodríguez Andrés

Cooperates with  8  Groups

14/04/2019

encarna sanchez garcia

Cooperates with  14  Groups

Café Apata

14/04/2019

Café Apata

Cooperates with  2  Groups

14/04/2019

Roberto Velasco Zúñiga

Cooperates with  1  Group

Ángel Álvarez Rodríguez

13/04/2019

Ángel Álvarez Rodríguez

Cooperates with  1  Group

Carmen Usero

13/04/2019

Carmen Usero

Cooperates with  1  Group

13/04/2019

Gregorio Morales

Cooperates with  3  Groups

Andrea Fer

13/04/2019

Andrea Fer

Cooperates with  1  Group

Antonio Iofrío

13/04/2019

Antonio Iofrío

Cooperates with  3  Groups

Thuban Isesi

13/04/2019

Thuban Isesi

Cooperates with  1  Group

13/04/2019

Raquel Pérez Sastre

Cooperates with  1  Group

José Luis Giménez Abad

13/04/2019

José Luis Giménez Abad

Cooperates with  3  Groups

04/04/2019

Ana Sanchez Fuertes

Cooperates with  1  Group

Victor Aranda Domina

31/03/2019

Victor Aranda Domina

Cooperates with  1  Group

Lara Amescua Alcázar

01/03/2019

Lara Amescua Alcázar

Cooperates with  2  Groups

01/03/2019

alma niembro prieto

Cooperates with  1  Group

28/02/2019

Ignacio Pérez

Cooperates with  1  Group

28/02/2019

Belen Delgado Azqueta

Cooperates with  1  Group