Ana Castel

Ana Castel

Huesca, Spanien


Teamer in 1 Gruppen

Seit 11-09-2019 gespendet: 1 €

Mitglied in folgenden Gruppen

1

10.626 € Gespendet

161 Teamer

Teamer seit:  11/09/2019

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es