ana alcalde catalan

ana alcalde catalan

Madrid, Spagna


Teamer in 1 Gruppi

Da 13-02-2019 ha contribuito 12 €

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10.626 € Totale raccolto

161 Teamer

Teamer da:  13/02/2019

Yo Nemalínica, looking for a therapy for Nemaline Myopathy

We are a non-profit association consisting only of 28 people affected by Nemaline Myopathy and their families, distributed throughout Spain. MN is a rare neuromuscular genetic disease (1:50,000 births) without a cure and treatment, with almost non-existent study. We have managed to launch a research project. Would you help us improve the future of our beloved ones? We'll be greatly grateful! www.yonemalinica.es